The services are clinical data management for linked health data including data cleaning. The clinical focus is on patients with rare diseases and cancers (breast, lung, colonic, ovarian, prostrate and blood cancers). The required services include reviewing clinical data from Genetic Medical Centres (GMCs) for completeness, consistency and quality to specified data models, definitions and NHS data standards.
The service provider will need to manage follow up with Genomic Medical Centres (GMCs) to address omissions, inconsistencies and non-standardized data. The tasks include secure management and handling of patient data.
Ideally, this work will be performed through access to the Genomics England secure data facilities.